The Stony Brook Adult Cystic Fibrosis Program has been following the adult CF patient population in Suffolk County since we opened in 2016. The Center includes a multidisciplinary team of physicians, cystic fibrosis nurse practitioner, social workers, mental health coordinator, nutritionist, respiratory therapist, sub-specialty providers, and genetic counselors who work with patients and families. Our team provides inpatient and outpatient care at Stony Brook University Hospital. The Adult CF program works closely with the Pediatric Cystic Fibrosis program to assure coordinated transition from pediatric to adult CF care, as well as collaborative research and performance improvement projects to improve the care for our patients.
Stony Brook Adult Cystic Fibrosis Program
269 East Main Street
East Islip, NY 11730
Center Phone Number: (631) 444-8340
Appointments: (631) 444-5437
The Transition from Pediatric to Adult Cystic Fibrosis Care
The Adult Cystic Fibrosis program works closely with Dr. Kier and the pediatric CF team to assure a well-coordinated transition from pediatric to adult care. We have structured our Cystic Fibrosis program to assure that coordination using a shared nurse coordinator allows patients to seamlessly make the transition. In addition, the Adult Cystic Fibrosis physicians will also conduct meet and greet visits in conjunction with the pediatric CF team to meet the adult CF physician, learn about the adult approach to CF care, and to answer questions that patients and families may have regarding the adult CF program.
The Cystic Fibrosis Foundation also has additional resources on making the transition from pediatric to adult care available on their website.