The Cystic Fibrosis Foundation has created a hub of information that can be accessed by our patients anytime via the CFF.org website. This information includes specifics regarding CF care for both adults and children as well as those transitioning into adult CF care and those that may be caring for someone with CF. These links are useful for both those who are newly diagnosed, or those with an existing diagnosis.
There is additionally a CF Community Blog that is a useful social resource to allow our patients to connect to the greater CF network.
Information regarding upcoming and ongoing research can also be found on this website.
The CF Foundation: www.cff.org
CF information resource: www.mycysticfibrosis.com
CF reference: www.ygyh.org/cf/whatisit.htm
Starbright Foundation: www.starbright.org
Pulmozyme Inhalation Solution and CF information : www.pulmozyme.com
Tobramycin Inhalation Solution and CF information: https://cysticfibrosisnewstoday.com/tobramycin/
Vest Airway Clearance System: www.thevest.com